C Craft
Well-Known Member
I am so whizzed off at the moment. If I put it to words I would be banned!! My wife has been having a terrible time in addition to all the problems she has been having with an auto immune disease. She suddenly begin having seizures at the beginning of last month. The first ones were real bad! Since then they have varied in severity! So with all the problems they decided to have her do a 3 day EEG. Since we couldn't get an appointment till the middle of next month to go over the results. I used the patient portal to reach out to the doctor and ask if he could share the results of the EEG. Perhaps they might be able to change her meds or understand more about how to treat them, etc.!
This was the neurologist's reply!! "The EEG did not demonstrate any seizures; and I understand she did have her spells during the study, so overall a good result."
Are you for *^&^%#@&^* real???? So maybe seizure may not be the correct terminology but to lessen what is going on with her to "spells" is not only a condescending attitude but at the very least shows a failure to grasp the problem and a complete lack of professionalism!! I have brief moments of one of those so called "spells" on video!
From my research, not all seizures show up on EEG's. Also the more I look into this it begins to look quite possibly "Epileptic seizures"! And I know once again the non-trained laymen is putting forth a possible diagnoses! So if I am wrong I am at least trying to figure out what is going on with my wife. Before these "spells" kill her!! I live with them everyday and they are scary to say the least. However what scares me the most is someone trying to minimize them to "spells" ! Without even the common curtesy to entertain the fact that something that is happening should not happen to anyone! To suggest that stress can cause these "spells" is a complete and total cop-out to keep from saying what needs to be said. I don't know what is causing this!! You yourself said this was beyond your expertise when you said you wanted us to go see another neurologist at the University of Southern Alabama! Now when you are faced again with something that is beyond your expertise, you demean the patient and call their problem "spells" !
I think I will stop here as if I continue I am going to blow a gasket!!
This was the neurologist's reply!! "The EEG did not demonstrate any seizures; and I understand she did have her spells during the study, so overall a good result."
Are you for *^&^%#@&^* real???? So maybe seizure may not be the correct terminology but to lessen what is going on with her to "spells" is not only a condescending attitude but at the very least shows a failure to grasp the problem and a complete lack of professionalism!! I have brief moments of one of those so called "spells" on video!
From my research, not all seizures show up on EEG's. Also the more I look into this it begins to look quite possibly "Epileptic seizures"! And I know once again the non-trained laymen is putting forth a possible diagnoses! So if I am wrong I am at least trying to figure out what is going on with my wife. Before these "spells" kill her!! I live with them everyday and they are scary to say the least. However what scares me the most is someone trying to minimize them to "spells" ! Without even the common curtesy to entertain the fact that something that is happening should not happen to anyone! To suggest that stress can cause these "spells" is a complete and total cop-out to keep from saying what needs to be said. I don't know what is causing this!! You yourself said this was beyond your expertise when you said you wanted us to go see another neurologist at the University of Southern Alabama! Now when you are faced again with something that is beyond your expertise, you demean the patient and call their problem "spells" !
I think I will stop here as if I continue I am going to blow a gasket!!